Sunday, July 25, 2010

The latest Check-Up

Nick just passed his one year anniversary from Treatment!!!! We are thrilled to say that his last check-up went very well. The doctor's are very encouraged by his progress and he has regained all of his weight back. Nick has kept busy this summer with Baseball and Swim Team. He just finished his last meet and was able to take 2 seconds off his time for a very exciting win in his heat. He is now turning his thoughts to the football season which starts in another week.

It has been great to see Nick return to his old self this year. He did really well in 5th grade and was able to re-integrate back into his sports.

A few weeks ago, we got word that another little girl from our area was diagnosed with Medulloblastoma. Julia has undergone surgery and is still recovering. We will do everything we can to help this family, and I would ask that anyone who is still reading this blog, please pray for Julia and her family.

I will provide another update after Nick's next check-up in 3 months.

Tuesday, January 26, 2010

The Second Check-Up

Nick had is second check-up which consisted of an MRI and Spinal Tap just before the holidays. The MRI of his brain looked good. No sign of any tumor which is great news. His spinal MRI looked good also. There was a small spot that was questionable, but not enough to warrant any further action. Unfortunately, as good as technology is, it is not without its flaws, which leads to some apprehension every time we go through this process. Fortunately the spinal fluid had no abnormal cells which is a positive. So now we will wait another 3 months to the next check-up and hope for the best.

Nick, meanwhile is doing great. He is having a great year in school and continues to amaze us. You would never know that he missed a whole year of school. In his spare time, he is playing basketball and we have enrolled him in Parisi to work on his coordination, speed and agility. One of the lasting effects of the surgery, chemo and long hospitalization is that he has lost a fair amount of muscle mass and this has thrown off his balance and coordination. We are seeing continual improvements and know that it is just a matter of time (and effort) before he is back to his old self.

Now it is back to the normal daily grind for another 3 months until his next check-up. The best way I can summarize it is long stretches of normal, punctuated by a couple of weeks of hell, anticipating the tests and waiting for the results. Fortunately with 3 active kids, there is not a lot of time to dwell on anything for more than a minute before another parenting crisis hits!

I will continue to provide quarterly updates on his check-ups (and hopefully it will stay that way forever!)